Thursday, May 29, 2014

Nadir Appointment #3

Why am I oinking like a pig? Could it be because I gained 5 pounds since my last chemo? Or could it be because I found out today that I am a guinea pig at my cancer treatment center? The answer is yes to the later, but I really did gain 5 pounds. The doctor I saw today told me that I am the first person that they have tried 'my' chemo cocktail on. Most people with breast cancer have surgery FIRST and then chemo, which would be TC chemo (taxotere and carboplatin). The cocktail I'm receiving is TCHP. My cocktail includes herceptin and perjeta. Herceptin is a hormone blocking chemo and the perjeta is like a super charger that help the herceptin do its job better. Up until Dec 2013 this was only given to those who's cancer had matacisized. But they discovered it would work well on shrinking large cancerous tumors that were spreading fast too. My tumor was the size of a lime and had already spread to my lymph nodes. My doctor decided I would be the first patient at their clinic to try this new concoction. Three weeks after my 1st chemo the tumor was GONE! They are very pleased with how well it's working. They love that my body is handling it so well too. The goal with this new type of chemo is to shrink the tumor and kill as much of the cancer BEFORE surgery so that when surgery does happen there are fewer cancer cells left behind. And then any cancer cells that may be left behind will get a nice 6 week dose of radiation EVERY weekday. Sounds to me like I win and cancer loses! At the end of my TCHP chemo I will continue having H (herceptin) chemo every 3 weeks until March of next year. That hormone chemo will not make me sick and each treatment will last 30 minutes.

My port access today was more painful than I remember. My port site hurt for a good hour after my blood draw. Not sure why that was the case, but I'm just glad it's over.
My white blood count is down to a 3, between 4-10 in normal. I'm at an increased change of infection so I need to be careful. The doctor mentioned that when the white count is low I have a greater change of mouth sores, but so far my mouth has not been as bad as past chemo's. Having a low white count can also effect my gut, so we discussed adding a pro-biotic pill or yogurt to my daily routine.
My platelets were good. They were at 135 and I believe the low end of normal is 140, so I'm just a little low.
My red blood cells (hgt) were at their lowest too. They're at a 32 and normal is between 38-48.

Please check the calendar and see if there is anything you can do. I know there isn't a whole lot on there right now but there are some attention dates with my kids and I think 1 more dinner.

I'm thinking of changing up how I send out my journal updates and calendar items. I can't tell if this blog is reaching as many people as I had hoped for. And, now that I've used this blog I'm not sure it's everything I had hoped for. My idea is to send out an email when I have a new journal update or calendar item to those people who's emails I already have viewing this blog. I'm working out the logistics of how to make that work so until then keep checking here for updates and calendar items. Leave me a comment if you love this blog or have any suggestions. I'd really love feedback!

Could you all do me a favor after you read this entry by clicking on the heart so I know who has seen this?

My next chemo is on Thursday next week at 8:30am. My kids last day of school is Friday next week. If you'd like to play with my kids that following week while I'm sick let me know. Comment below or call me and we can arrange a play day if you are interested.

Thank you for being a part of my journey. Thank you for continuing to love and strengthen me. I have the best support group of friends and family! I love you all!

Sunday, May 18, 2014

Onset of chemo symptoms

I started feeling sick much quicker with this treatment. By lunchtime on Friday was feeling icky. I was able to function, but the yucky feeling worsened and by 7pm I took a pill and went to bed. I think the onset of this was because I didn't sleep well the night before. Taking my steroid pill late threw off my sleeping schedule.
Saturday morning Dave fed me eggs and toast in bed just before 7am. I was able to fall back to sleep after. I got up and helped 'encourage' the kids to do their Saturday jobs. (Dave was working today). The boys went and played kicked ball with a big group of friends. Throughout the day I felt yucky, with no energy, no motivation, with nausea just always lurking in the background.
After work Dave got our swamp cooler hooked up and going. Having a cool house will be nice this coming week!
Drea and the boys went to a movie with our neighbor. After the movie Bradley and Dave went and mowed Bradley's 'lawn job'. I went with them and relaxed at my Dads.

I slept great last night! And because I was feeling half-way decent I went to church just for the sacrament part today. While the rest of my family was at church I listened to conference talks and took a long nap.
Dave and Dallas made dinner. And now Dave is off with the boys getting some fresh air, which is providing me with a quiet house.

Thursday, May 15, 2014

Chemo #3

I'm half way done! Hurray!
My appointment time was 8:30. That proved to be a little difficult but I made it by the skin of my teeth! Next time I won't do carpool drop off, which will help me be more on time.
I was called back pretty quick. The port access was about as comfortable as a port access can be. Not the best one I've had. My weight is back to 136, which is where I started. That's good news.
Had a great appointment with the Dr. He is retiring in June so the next chemo will be my last appointment with him.
Here's what was discussed today:
-The lump is still gone. There is NO sign of it at all! The chemo is still working. With that being said the Dr. sees no need to do an MRI. The fact that he can't find it means the chemo is doing its job. If there is any cancer lurking it'll continue to be killed by chemo and then removed at surgery. No MRI makes me uber happy! I hate MRI's.
-A new drug will be added to me chemo today. It's called emend, and will help with nausea. I was only told it stays in my body for 72 hours. We'll see how well it works.
-My blood count shows my platelets went up from 119 to 135, but are still lower than the low point they want me at. My red blood count, hgb and hematocrit are all still low too. My white blood count is still within normal.
-Before my 5th treatment (June 26th) I need to have an echo cardiogram to make sure my heart is still strong and not too stressed out. I'll schedule that for the beginning of the week to make sure the results are back in time for chemo.
-I need to keep up on moisturizing my nose after chemo to help with nose bleeds. I seem to only get them for about 10-12 days after chemo. The worry is that my platelets are low and they don't want me to not be able to control the bleeding. If it were to get bad enough they'd send me to an Ear, Nose and Throat specialist. I'd like to avoid that so I'll be diligent in vaselining my nose and using my humidifier.
-At my last chemo (July 25th), after I ring the chemo bell my doctor will walk me over to radiology to set me up as a patient. Radiation will begin about 3 weeks after surgery.
-Surgery will happen about 2-3 weeks after my last chemo, but my doctor wants to make sure I receive my hormone chemo before I have surgery so I won't have to come into chemo a few days post surgery with a hurting boob. With that being said I'll most like have my hormone chemo 3 weeks after my July chemo and have surgery the following week.
-I will call my surgeon as soon as my July 25th chemo is done to schedule surgery. Remember, this surgery is the temporary one. The incision will follow where the cancer was found. An empty spacer will be inserted. After surgery I'll have to go in regularly to have the spacer filled (slowly to a nice size, and tight breast)
-About 3 weeks after surgery and the spacer is filled the radiation will begin. Every weekday for 6 weeks. The whole breast will be radiated along with the area that had the 2 effected lymph nodes. Can you say red, hot and crusty?

My chemo buddies today were, my dad (which reads- MY HERO!), Julia- one of my Mom's caregivers, my Aunt Pam and my son Bradley. Our time was spent playing games, eating suck on candies, visiting, and having Bradley get us free snacks from the kitchen area in the chemo room. Bradley loved meeting Trent the Therapy Dog! He loved being there and said it was fun. Fun must be relative to him. I don't view chemo as fun, but having good company makes it funner (not a word!).

Today I began paying off all the medical bills. I've hit my out of pocket maximum, which was reached quickly. Now I just need to find out if I have to continue making my co-pays. If I do, I'll be making a co-pay every day I have radiation. A phone call to my insurance will be made tomorrow! I looked at my insurance EOB's and my insurance has already paid out over a quarter of a million dollars! And that doesn't include today's chemo! Thank goodness for insurance!!

Please check out the planner! There are attention days to claim. Dinners, and check up on me times too.

And because I haven't said anything, not because I've forgotten! I want to thank all those who came and supported me at the Race for the Cure! I had a total of 37 team member. 36 of them came out and walked! It was a day I'll never forget! And it's something I'll be doing again next year!

And last, I have to remind all of you of how much I love you! You are all so great at reminding me I'm loved and now it's my turn to tell you! I am blessed by your prayers, your thoughts and your outreaching on my families behalf! I pray that you will be blessed for your love and service!

I love you all!

Monday, May 5, 2014

Nadir Appointment #2

Today was my nadir appointment. It was a great pleasure to have my Aunt Pam (My Mom's sister) be my support and extra ears for this appointment. She lives in Washington state and it just worked out she was in town. I really enjoy my time with her, and I love how much she reminds me of my Mom.
Back to my appointment...
The wait to be called back for the port access was extra long today. I think we ended up waiting about 35 minutes. They checked my weight first; I gained 3 pounds, which isn't a big surprise because I wasn't as sick after this last chemo (and I ate a ton of food this past weekend!!). My blood work came back with my White blood count being a 6. They want me to be between 4-10. My platelets were low, which means bleeding can be a problem. I was aware of this already as I've had quite a few bloody noses. I have also been experiencing a period that just won't end. My red blood count was 119,000. The low end of normal is 140,000. So I'm lower than the low. I could tell my red blood count was down as I've felt really tired and have been taking naps almost daily. They expect my red blood count to continue on a down hill trend, which means I'll be more tired after each treatment. If my count gets as low as 30,000 then they'll intervene and do a blood transfusion. I assume I can continue receiving normal chemo treatments until it reaches that point, but I didn't ask to make sure.
As for the period that isn't ending if it continues until Friday then I need to call in and they'll have me see an ob/gyn to see about getting help to have it stopped. For the bloody noses they want me to continue doing what I have been doing- putting Vaseline in my nose and using a humidifier at night. If I have a bloody nose that I can't get to stop then I need to call in and be seen.
After my appointment my Aunt and I went out and celebrated Cinco de Mayo by having Mexican food for lunch.

My next chemo appointment is May 15th at 8:30am. I hope I continue to gain my strength and energy in time for them to knock me down again :)

I love you all!

Tuesday, April 29, 2014

April 28th & 29th

Today was not too bad of a day! I got over 10 hours of sleep and woke feeling rested. I managed my nausea pretty well and had some wonderful sister in my ward take great care of me! I had very little energy so it was nice to rest. By the evening I was 'thinking' I felt normal, but by then end of dinner I had overdone it. My kids noise bothered me, their running around and being happy bothered me. Stimulation seems to make me sick. I took a pill an went to sleep around 9:30. Our smoke detectors started making sounds around 3am and woke me from my comfortable sleep. By 5:30am I was feeling a huge wave of nausea and needed to take a pill. I didn't sleep comfortable after that. Dave was very good to let me stay in bed while he took care of the kids and got them off to school. He even came back home after dropping Drea off to make sure I was ok. I am very thankful to those who were on my calendar as helpers today! My morning helper made a yummy scrambled egg and my mid-morning helper took me for a walk, which felt GREAT! I had a nice yummy salad just before taking me afternoon nap.
So far I have not noticed any rash, which means no side effect to the taxitere. Hurray! And my mouth sores are not as bad as last time either. (Are you loving this great news as much as I am?!)
This afternoon I did something that a normal person would do- I went to the bread store. I felt super accomplished! I got to spend some one-on-one time with Colter doing homework. I think we spent more time chatting than actually doing work, but that was ok. I enjoyed it!
Once I was able to get over the worst of the nausea I would say that today has been one of the better days.
Here's to hoping for more better days!

Saturday, April 26, 2014

April 25th & 26th

Friday morning at 1:50am I could no longer sleep. I'm going to blame the steroids I took. I was able to stay in bed and rest but sleep never took over again. After the kids were off to school and I'd taken my morning steroid I was still tired but feeling buzzed from the drug. I folded laundry, cleaned up the kitchen, de-junked my freezer and gave it a good scrub down. I had soup for lunch and was finally able to take a quick nap after lunch. My boys went home with a friend after school which was very helpful as that was the time I was sleeping. Up to this point I hadn't felt nauseated, but my body didn't feel good. All those chemo drugs don't help. I had a nice time with the girls after they got home. Had a snack and eventually picked up the boys from their play date.
Drea had her 'attention' date with her Aunt Janelle. Dallas went off and hung out with friends so it was just Dave and I and the boys. We spent our time working on the boys pine wood derby cars at Dave's parents house. I snuggled on their couch under a blanket while the boys did their thing. By bedtime I was exhausted but wasn't able to fall asleep so I took one of my pills and slept from 10:30pm-8:30am. I woke this morning feeling really great!! I was able to go with Dallas to her Young Women recognition luncheon. And I was able to eat and enjoy the food they served! Dave had a couple errands to run and I was feeling good enough so I tagged along. This afternoon I took a nice nap and have continued to feel pretty good. I am eating every 2 hours and have enjoyed what I've ate. Dallas and Aundrea had a special outing today with a friend and neighbor who took them shopping. They came home with some really fun and cute clothes! My dad stopped by for a visit and it was nice to see him and hear about his camping trip. As for now, Dallas is off at the Real soccer game, Dave and Drea are off having some daddy daughter time and I'm home bathing the boys and settling in for a nice quiet night.
I am grateful to have had 2 pretty good days after chemo. I know your prayers are working. I feel them. I am truly grateful for them!

I love you all!

Thursday, April 24, 2014

Chemo #2

I was able to use my numbing jelly this morning. It seemed to help as this port access was the least painful.
Before chemo I saw the Dr. He did a breast exam and couldn't even find a lump. AT ALL!! That means this chemo garbage is doing its job! We talked about menopause, and it looks like having sporadic periods or none at all is normal. I've had menopause symptoms, but I also experienced a period, and let me tell you it wasn't pleasant. (sorry men reading this. be glad you're not a girl). We discussed management for nausea this go around. I'm going to take my pill the in the morning before I start having symptoms to see if that helps me get through the day a little better. I still need to exersize each day despite my not feeling good. This can be really hard when I'm feeling my worst, but I see its advantages so I'll make myself do it! I gave a urine sample and it came back negative for a bladder infection, which means I was most likely passing a kidney stone. This morning I was already over it. They are going to culture out the urine just to be safe, but most likely it'll be negative still.
My friend Michelle Hilton joined me for my treatment today to photograph all the fun, and not so fun. We waited for almost 30 minutes before I was called back into the chemo room. By then there were quite a few people in the room. It has about 18 chairs and I'd say they were a little more than half in use. My sister-in-law joined us as well and brought with her the most amazing treat! Homemade kettle corn! We played a game and gobbled down our delicious popcorn. My treatment began around 11:20 and I was done by 2:30.My friend from my 1st treatment was there and it was fun to see her and give her a big hug. Up to this point I still had no idea what her name was or what cancer she was battling. All I know is we connected the first time we met. She's one chemo ahead of me so it's nice to hear how she's handling it so I know what to expect. She is probably in her late 60's, early 70's, so her experience and mine may vary a little because I've got youth and great health on my side. I'm not exactly sure what drew her to me, but she's just one of those people I can tell is someone special. I hope to get know her better. I did learn today that her cancer is lymphoma, inoperable, and she only has to have 6 chemo treatments, and will have a 90% success rate. That's great news!
Tonight Dave and I were able to take the boys to their Literacy Night. It made me so happy being back in the Elementary school! I truly miss volunteering in the classroom and the teachers I worked with. Seeing other Mom's and people I know was great too!
My plan? I planning on feeling good tomorrow. I'll do whatever comes to mind, and have no set chores. If all goes like it did last time I'll start feeling crumby tomorrow night around bedtime. However I've heard the 2nd treatment isn't as hard. Let's hope.
As for updates? Once the yucky part hits the updates will be given by my other co-authors.
I do have a great setup for next week with people coming in to help feed me during the day while my hubby and kids are at work and school. I'm excited to see if that's helpful. I know so many of you want to do 'something', so this should give people that opportunity.
Feel free to send me a text. Talking on the phone is too hard when I'm battling the worst of it, so don't be offended if you call and I don't answer.
I've said it before and I'll keep saying it! Thank you for your love and support! I could not do this without it! Your prayers and concern are felt! I continue to be amazed by how many people have reached out to me. I am truly humbled and grateful! Thank you!

I love you all!